DataBreaches.Net

Menu
  • About
  • Breach Notification Laws
  • Privacy Policy
  • Transparency Report
Menu

Patient privacy rights advocate attacks plans to mine medical records

Posted on March 21, 2008October 24, 2024 by Dissent

From Health IT News:

Deborah Peel, founder and chairman of Patient Privacy Rights, takes exception to a plan by Mountain View, Calif. -based Perlegen Sciences, Inc. to collaborate with an undisclosed electronic medical records vendor to identify and develop genetic markers that predict how patients are likely to respond to specific medical treatments.

The New Tuskegee

An EMR vendor (whose name is kept secret) profits from secret access to Americans’ health information and the patients don’t know their health information has been data mined or their genetic samples were used until they get paid. They still might not know even then why they got a check.

“Consent” for getting genetic test data is ONLY obtained from the provider, NOT the patient, via “HIPAA and IRBs” – both of which totally bypass the patient. HIPAA allows unfettered use of PHI by covered entities – in total defiance of medical ethics and strong laws in every state which prohibit the use of PHI without consent. HIPAA was gutted by industry appointees to HHS in 2002 and the right of consent was eliminated.

There is no consent from patients up front to have their records data-mined or their DNA samples taken by Perlegen.

Full Commentary – Healthcare IT News

Category: Health Data

Post navigation

← EMR vendor to share patient data with genetics research firm
Effort To Improve Patient Records Is Drawing A Crowd →

Now more than ever

"Stand with Ukraine:" above raised hands. The illustration is in blue and yellow, the colors of Ukraine's flag.

Search

Browse by Categories

Recent Posts

  • Masimo Manufacturing Facilities Hit by Cyberattack
  • Education giant Pearson hit by cyberattack exposing customer data
  • Star Health hacker claims sending bullets, threats to top executives: Reports
  • Nova Scotia Power hit by cyberattack, critical infrastructure targeted, no outages reported
  • Georgia hospital defeats data-tracking lawsuit
  • 60K BTC Wallets Tied to LockBit Ransomware Gang Leaked
  • UK: Legal Aid Agency hit by cyber security incident
  • Public notice for individuals affected by an information security breach in the Social Services, Health Care and Rescue Services Division of Helsinki
  • PowerSchool paid a hacker’s extortion demand, but now school district clients are being extorted anyway (3)
  • Defending Against UNC3944: Cybercrime Hardening Guidance from the Frontlines

No, You Can’t Buy a Post or an Interview

This site does not accept sponsored posts or link-back arrangements. Inquiries about either are ignored.

And despite what some trolls may try to claim: DataBreaches has never accepted even one dime to interview or report on anyone. Nor will DataBreaches ever pay anyone for data or to interview them.

Want to Get Our RSS Feed?

Grab it here:

https://databreaches.net/feed/

RSS Recent Posts on PogoWasRight.org

  • The App Store Freedom Act Compromises User Privacy To Punish Big Tech
  • Florida bill requiring encryption backdoors for social media accounts has failed
  • Apple Siri Eavesdropping Payout Deadline Confirmed—How To Make A Claim
  • Privacy matters to Canadians – Privacy Commissioner of Canada marks Privacy Awareness Week with release of latest survey results
  • Missouri Clinic Must Give State AG Minor Trans Care Information
  • Georgia hospital defeats data-tracking lawsuit
  • No Postal Service Data Sharing to Deport Immigrants

Have a News Tip?

Email: Tips[at]DataBreaches.net

Signal: +1 516-776-7756

Contact Me

Email: info[at]databreaches.net

Mastodon: Infosec.Exchange/@PogoWasRight

Signal: +1 516-776-7756

DMCA Concern: dmca[at]databreaches.net
© 2009 – 2025 DataBreaches.net and DataBreaches LLC. All rights reserved.