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Private Access seeks experimental treatments for patients without giving up privacy

Posted on October 26, 2008October 24, 2024 by Dissent

 

Dean Takahashi reports:

Robert Shelton was a successful real estate developer who became wealthy creating buildings such as the Palm Beach Convention Center. But his world was rocked when his son was diagnosed with a rare genetic disorder. He then faced a quandary. He needed to find treatment for his son, but doing so would cost his family its privacy.

That dilemma ultimately spurred a business, Private Access, which is coming out of stealth today at the Health 2.0 conference in San Francisco. The company allows people with health conditions to describe their problems anonymously. It also posts news of clinical trials of new treatments. It thus allows medical researchers and potential research subjects to find each other.

Read more in the NY Times

Category: Health Data

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