Julia Angwin and Steve Stecklow report:
At 1 a.m. on May 7, the website PatientsLikeMe.com noticed suspicious activity on its “Mood” discussion board. There, people exchange highly personal stories about their emotional disorders, ranging from bipolar disease to a desire to cut themselves.
It was a break-in. A new member of the site, using sophisticated software, was “scraping,” or copying, every single message off PatientsLikeMe’s private online forums.
PatientsLikeMe managed to block and identify the intruder: Nielsen Co., the privately held New York media-research firm. Nielsen monitors online “buzz” for clients, including major drug makers, which buy data gleaned from the Web to get insight from consumers about their products, Nielsen says.
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