Sean Brooks of CDT writes:
… Recently, the Council for Responsible Genetics published a “Genetic Privacy Manual.” The online guide is a comprehensive source of information for consumers about the use of genetic information in fields ranging from human health and reproduction to the criminal justice system. The guide delves into the science of genetic testing and summarizes legal protections such as the relatively new Genetic Information Nondiscrimination Act (GINA).
[…]
As the Genetic Privacy Manual points out, there are huge potential benefits from genetic research, both to individuals and to the wider scope of medical science. But the innovative possibilities should not blind the industry to the very real risks to consumer rights that the technology poses. As markets for secondary uses for genetic information grow, consumers will have to stay very aware of how their genetic profiles are being acquired and shared.
Read more on CDT.
Related: Council for Responsible Genetics. Direct link to section on Privacy issues and resources.
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