DataBreaches.Net

Menu
  • About
  • Breach Notification Laws
  • Privacy Policy
  • Transparency Report
Menu

NIH in Pact to Protect Privacy of Family, Maintain Research

Posted on August 8, 2013 by Dissent

Ron Winslow reports a settlement in the long-running dispute concerning the use of cancer cells taken from Henrietta Lacks without her consent and then used by researchers for over 60 years:

The National Institutes of Health on Wednesday said it reached an unprecedented agreement to protect the privacy of the family of a woman whose cancer cells have been used as a basis for thousands of medical studies in recent decades.

The pact, which affects researchers’ access to DNA data from laboratory cells derived from the tumor tissue, addresses a thorny issue—how to balance the needs of researchers and the rights of patients when seeking access to scientifically important but potentially sensitive personal medical data.

Read more on The Wall Street Journal.

Category: Uncategorized

Post navigation

← Auburn University error exposes donor and alumni information on public server
Indiana: No data breach after stolen laptop traced to Indy home →

Now more than ever

"Stand with Ukraine:" above raised hands. The illustration is in blue and yellow, the colors of Ukraine's flag.

Search

Browse by Categories

Recent Posts

  • Fraudsters, murderers, students: who the GRU assembled a team of hacker provocateurs from and why it failed
  • Order of Psychologists of Lombardy fined 30,000 € for inadequate data security protection and detection following ransomware attack
  • Lower Merion School District says a data breach was caused by a computer glitch
  • After $1 Million Ransom Demand, Virgin Islands Lottery Restores Operations Without Paying Hackers
  • Junior Defence Contractor Arrested For Leaking Indian Naval Secrets To Suspected Pakistani Spies
  • Mysterious leaker GangExposed outs Conti kingpins in massive ransomware data dump
  • Resource: HoganLovells Asia-Pacific Data, Privacy and Cybersecurity Guide 2025
  • Class action settlement following ransomware attack will cost Fred Hutchinson Cancer Center about $52 million
  • Comstar LLC agrees to corrective action plan and fine to settle HHS OCR charges
  • Australian ransomware victims now must tell the government if they pay up

No, You Can’t Buy a Post or an Interview

This site does not accept sponsored posts or link-back arrangements. Inquiries about either are ignored.

And despite what some trolls may try to claim: DataBreaches has never accepted even one dime to interview or report on anyone. Nor will DataBreaches ever pay anyone for data or to interview them.

Want to Get Our RSS Feed?

Grab it here:

https://databreaches.net/feed/

RSS Recent Posts on PogoWasRight.org

  • Fears Grow Over ICE’s Reach Into Schools
  • Resource: HoganLovells Asia-Pacific Data, Privacy and Cybersecurity Guide 2025
  • She Got an Abortion. So A Texas Cop Used 83,000 Cameras to Track Her Down.
  • Why AI May Be Listening In on Your Next Doctor’s Appointment
  • Watch out for activist judges trying to deprive us of our rights to safe reproductive healthcare
  • Nebraska Bans Minor Social Media Accounts Without Parental Consent
  • Trump Taps Palantir to Compile Data on Americans

Have a News Tip?

Email: Tips[at]DataBreaches.net

Signal: +1 516-776-7756

Contact Me

Email: info[at]databreaches.net

Mastodon: Infosec.Exchange/@PogoWasRight

Signal: +1 516-776-7756

DMCA Concern: dmca[at]databreaches.net
© 2009 – 2025 DataBreaches.net and DataBreaches LLC. All rights reserved.