Dionne Cordell-Whitney reports: Minnesota collects DNA samples from newborn children, then illegally keeps the genetic information and shares it with third parties without informed consent of the parents, parents say in a class action. Lead plaintiffs Nathan and Katrina Anderson sued the state, the Minnesota Department of Health, and its commissioner, in Hennepin County Court….
Search Results for: Minnesota newborns
Privacy and use of newborns’ blood samples
Over on Privacy Lives, Melissa Ngo blogs about an issue I’ve discussed a number of times on this blog: the collection, storage, and use/misuse of newborns’ blood samples. Melissa points us to a discussion on Minnesota Public Radio: … On Tuesday, parents, doctors and researchers urged state lawmakers to reject proposed restrictions on Minnesota’s Newborn Screening…
Minnesota offers new controls on newborn blood tests
The Minnesota Department of Health announced new measures Friday designed to address concerns that a program of blood screening for Minnesota newborns could violate patient and family privacy rights. In a key step, the department will propose legislation this year giving it the right to keep infants’ blood samples for two years, as part of…
States Hand Over the DNA of Newborns to DHS (OpEd)
Marti Oakley writes: Unknown to most new parents, or those who became parents in the last ten or so years, DNA of newborns has been harvested, tested, stored and experimented with by all 50 states. And all 50 states are now routinely providing these results to the Homeland Security Department. No doubt we can all…
MN court orders new constraints on newborn screening program
Tony Kennedy reports the latest on controversial newborn screening legislation in Minnesota that has been challenged in the courts: A state health program that takes blood samples from Minnesota newborns to screen for more than 50 diseases and disorders can continue despite a legal challenge on genetic privacy grounds, the Minnesota Supreme Court ruled today….
Indiana storing blood & DNA of 2 million children without parents' consent
It’s been an issue in Minnesota for years, but now WTHR alerts the public that Indiana also stores newborns’ blood and DNA without parental consent. Bob Segall reports: As word of an Eyewitness News investigation spreads through Holliday Park, parents admit they are surprised. “You’re kidding, right? I had no idea,” said Ramon Moore, playing…