Alex Philippidis writes about recent trends in addressing privacy concerns in genomic studies. He writes, in part: Dr. McGuire led a research team that published results in Genetics in Medicine last year from their study of consent given to researchers by 323 adults recruited into one of six genome studies at BCM. The adults were randomly assigned…
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Medical Privacy Test in GA
David J. DePaolo writes: A Georgia case highlights what I think is an interesting debate of medical privacy in the context of workers’ compensation. On Wednesday several amicus briefs were lodged with the Georgia Supreme Court on behalf of the Georgia Self-Insurer’s Association, Georgia Manufacturer’s Association and Georgia Poultry Federation urging the high court to reinstate a…
How much of your info can your hospital give to a fund-raising organization?
I just became aware of this article via Dr. Ken Pope’s wonderful mail list. Clark Kauffman reports: University of Iowa Hospitals is giving patient names and specific patient-treatment information to a fundraising organization that solicits donations through written appeals signed by physicians. Officials with both the hospital and the privately run University of Iowa Foundation…
How to Access (Get a Copy of) Your Medical Records
Helpful consumer info from HHS OCR: Message from Leon Rodriguez, Director, Office for Civil Rights Many consumers want to play a more active role in their health care. The right to see and get a copy of your medical records (called the right to access) is fundamental to your ability to participate in our health…
HHS Makes HIPAA Training Materials Available to State Attorneys General
Joseph Lazarotti writes: To date, State Attorneys General (State AGs) in at least four states (Connecticut, Indiana, Minnesota, Vermont) have exercised their authority to enforce the HIPAA privacy and security rules as granted by the Health Information Technology for Clinical and Economic Health (HITECH) Act (pdf), part of the American Recovery and Reinvestment Act of 2009 (ARRA). Following a nationwide live…
Top Experts Discuss Privacy Risks at 2nd International Summit on the Future of Health Privacy
Patient Privacy Rights and Georgetown University Law Center’sO’Neill Institute for National and Global Health Law Host Event Psychiatry Patient’s Story Highlights Growing Threat to Privacy WASHINGTON–(BUSINESS WIRE)– When a lawyer named “Julie” sought psychiatric treatment in Boston, she never imagined that the notes of sessions with her therapist would be digitized and made available to…