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SCOTUS won't hear prescription data-mining case

Posted on June 29, 2009 by Dissent

The wire services are reporting that the  U.S. Supreme Court will not hear an appeal by IMS Health Inc and Verispan that challenged a New Hampshire law would block companies from data-mining prescription information for the purpose of increasing drug sales. The companies had argued that the law violated their free speech rights. This is…

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A Push for the Wired Patient’s Bill of Rights

Posted on June 28, 2009 by Dissent

Starting with a few dozen supporters, including health bloggers, individual physicians, startups and Microsoft, a group is seeking to firmly inject the rights of patients into the Obama administration’s multibillion-dollar drive to computerize medical records. The group’s effort begins with a Web site, HealthDataRights.org, which goes live on Monday night. And it is a bottom-up…

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Broad Coalition Says Consumer Role Is Key to Improving Health and Health Care

Posted on June 28, 2009 by Dissent

From the press release: The future of health care should encourage expanded use of information tools to help consumers better manage their health, 56 diverse organizations said today as they embraced a framework for personal health information access and privacy. “Consumers need to be full participants in modern health information tools and services to help…

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Privacy Groups Challenge Calif. Bill

Posted on June 26, 2009 by Dissent

A California bill seeking to create a new regulatory framework for consumer genomics firms that interpret genomic data but do not analyze samples at an in-house laboratory has raised red flags within the personalized medicine community and among privacy advocates. California state Senator Alex Padilla (D-San Fernando Valley) earlier this year introduced SB 482, a…

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CDT paper on de-identification of personal health data

Posted on June 26, 2009 by Dissent

The Health Privacy Project at the Center for Democracy & Technology today released a major paper advocating the need for stronger standards for “de-identified” personal health information when used for medical research, to promote public health, or other specialized purposes. Stronger standards are needed to ensure that “de-identified” data cannot be re-identified in order to…

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FTC Approves Final Consent Order in CVS Caremark Case

Posted on June 24, 2009 by Dissent

Following a public comment period, the Commission has approved a final consent order in the matter of CVS Caremark Corporation, a case previously reported on this site that involved the hugest fine levied, to date, for a HIPAA violation. Additional documents on the case can be found here. Of particular interest (to me, anyway) was…

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