The World Privacy Forum has published a new page on genetic privacy outlining basic policy issues and collecting World Privacy Forum work in the area. The page also links to key external research being done in privacy and genetics, and also links to key organizations doing work in this area in the U.S. and the…
Ontario’s Example on Privacy
Ann Cavoukian, the Privacy Commissioner of Ontario, has a letter to the editor in the New York Times in which she recommends Canadian medical privacy law as a model for us: Re “Safeguarding Private Medical Data†(editorial, March 26): I couldn’t agree with you more. In Ontario, we take privacy very seriously, especially when it…
Cn: Patients' medical records to go online
Cai Wajun writes in the Shanghai Daily: Under a project to establish a digital health database for people in the city, residents now can view their medical tests and records through e-mails from www.smmail.cn, a government-run Website. Yueyang Traditional Chinese and Western Medicine Hospital is the first to participate in the service and about a…
Electronic Health Records wired for abuse (Op-Ed)
Dr. Deborah Peel, founder of PatientPrivacyRights.org, had an Op-Ed in yesterday’s Boston Herald: “Oops! They did it to Britney again.†No, it’s not a song parody, but a reflection of the poor state of American health privacy – something Bay Staters should think about as their Legislature considers a bill to mandate Electronic Health Records…
SafeMed gets the call from Google
Keith Darce of Copley News Service writes: Internet giant Google has tapped a medical software developer in San Diego to provide a key element of its test project that lets people create comprehensive medical records on the Web.SafeMed’s application sifts through vast medical databases and personal health records in the blink of an eye to…
The Real Elephant in the Room? Patient Empowerment Not Privacy
Seen on the Patient Empowerment blog: I read yet another article (this one online at FoxNews Business) where privacy concerns screamed louder than the benefits of empowering patients through the their use of personal health records. Now, I agree that privacy issues are important–of course we all want to be sure that our medical information…