DataBreaches.Net

Menu
  • About
  • Breach Notification Laws
  • Privacy Policy
  • Transparency Report
Menu

Musings on privacy issues in health research involving disaggregate geographic data about individuals

Posted on July 21, 2009 by Dissent

Maged N Kamel Boulos, Andrew J Curtis, and Philip AbdelMalik

International Journal of Health Geographics 2009, 8:46doi:10.1186/1476-072X-8-46
Published: 20 July 2009

Abstract (provisional)

This paper offers a state-of-the-art overview of the intertwined privacy, confidentiality, and security issues that are commonly encountered in health research involving disaggregate geographic data about individuals. Key definitions are provided, along with some examples of actual and potential security and confidentiality breaches and related incidents that captured mainstream media and public interest in recent months and years. The paper then goes on to present a brief survey of the research literature on location privacy/confidentiality concerns and on privacy-preserving solutions in conventional health research and beyond, touching on the emerging privacy issues associated with online consumer geoinformatics and location-based services. The ‘missing ring’ (in many treatments of the topic) of data security is also discussed. Personal information and privacy legislations in two countries, Canada and the UK, are covered, as well as some examples of recent research projects and events about the subject. Select highlights from a June 2009 URISA (Urban and Regional Information Systems Association) workshop entitled ‘Protecting Privacy and Confidentiality of Geographic Data in Health Research’ are then presented. The paper concludes by briefly charting the complexity of the domain and the many challenges associated with it, and proposing a novel, ‘one stop shop’ case-based reasoning framework to streamline the provision of clear and individualised guidance for the design and approval of new research projects (involving geographical identifiers about individuals), including crisp recommendations on which specific privacy-preserving solutions and approaches would be suitable in each case.

The complete article is available as a provisional PDF. The fully formatted PDF and HTML versions are in production.

Category: Uncategorized

Post navigation

← Deborah Peel: Comments on guilty plea
Details of 10,000 MS workers among stolen data →

Now more than ever

"Stand with Ukraine:" above raised hands. The illustration is in blue and yellow, the colors of Ukraine's flag.

Search

Browse by Categories

Recent Posts

  • CoinMarketCap Hacked, Scrambles to Remove Malicious Wallet Verification Popup
  • Montana Attorney General launches investigation into Lee Enterprises data breach
  • AT&T gets preliminary approval for $177 million data breach settlement
  • Aflac notifies SEC of breach suspected to be work of Scattered Spider
  • Former JBLM soldier pleads guilty to attempting to share military secrets with China
  • No, the 16 billion credentials leak is not a new data breach — a wake-up call about fake news (Updated)
  • Tonga’s health system hit by cyberattack (1)
  • Russia Expert Falls Prey to Elite Hackers Disguised as US Officials
  • Proposed class action settlement in In re Netgain Technology litigation
  • Qilin Offers “Call a lawyer” Button For Affiliates Attempting To Extort Ransoms From Victims Who Won’t Pay

No, You Can’t Buy a Post or an Interview

This site does not accept sponsored posts or link-back arrangements. Inquiries about either are ignored.

And despite what some trolls may try to claim: DataBreaches has never accepted even one dime to interview or report on anyone. Nor will DataBreaches ever pay anyone for data or to interview them.

Want to Get Our RSS Feed?

Grab it here:

https://databreaches.net/feed/

RSS Recent Posts on PogoWasRight.org

  • The Markup caught 4 more states sharing personal health data with Big Tech
  • Privacy in the Big Sky State: Montana’s Consumer Privacy Law Gets Amended
  • UK Passes Data Use and Access Regulation Bill
  • Officials defend Liberal bill that would force hospitals, banks, hotels to hand over data
  • US Judge Invalidates Biden Rule Protecting Privacy for Abortions
  • DOJ’s Data Security Program: Key Compliance Considerations for Impacted Entities
  • 23andMe fined £2.31 million for failing to protect UK users’ genetic data

Have a News Tip?

Email: Tips[at]DataBreaches.net

Signal: +1 516-776-7756

Contact Me

Email: info[at]databreaches.net

Mastodon: Infosec.Exchange/@PogoWasRight

Signal: +1 516-776-7756

DMCA Concern: dmca[at]databreaches.net
© 2009 – 2025 DataBreaches.net and DataBreaches LLC. All rights reserved.